Foundations and Organizations

Condition

National Organizations

Local Organizations

National Day/Week/ Month of Awareness


AGITATION OF ALZHEIMER’S DISEASE

Alzhemier's Foundation of America
Alzheimer's association Illinois Chapter

World Alzheimer's Month- September

World Alzheimer's Day, September 21


ALS

ALS Association
Les Turner ALS Foundation

ALS Awareness Month- May


ANOREXIA NERVOSA

National Association of Anorexia Nervosa & Associated Disorders
 

National Eating Disorder Awareness Week: Feb 25- March 3, 2019


ARNOLD-CHIARI MALFORMATION

Chiari & Syringolyelia Foundation
 

ATTENTION-DEFICIT DISORDER

ATTENTION DEFICIT DISORDER ASSOCIATION
 

ADHD Awareness Month- October


AUTISM

nATIONAL aUTISM aSSOCIATION
aUTISM Speaks

Autism Awareness Month- April

World Autism Day- April 2


BIPOLAR DISORDER

THE RYAN LICHT SANG BIPOLAR FOUNDATION
INTERNATIONAL BIPOLAR FOUNDATION

WORLD BIPOLAR DAY- MARCH 30


bulimia nervosa

The National Eating Disorders Association
 

American Cancer Society

Cancer

American Breast Cancer Foundation
Illinois Cancercare Foundation

Breast Cancer Awareness Month- October

World Cancer Day- February 4


chronic pain

The American Chronic Pain Association
American Pain Society

Pain Awareness Month- September


CROHN’S DISEASE

Crohn's & Colitis Foundation
 

World Inflammatory bowel disease Day- May 19th


CRPS (COMPLEX REGIONAL PAIN SYNDROME TYPE II)

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
 

Depression

hOPE FOR DEPRESSION RESEARCH FOUNDATION
aNXIETY AND DEPRESSION ASSOCIATION OF AMERICA
AFSP ILLINOIS

National Depression Awareness Month- October


Dystonia & Myoclonus

Dystonia Medical Research Foundation
 

Dystonia Awareness Month- September


EHLERs-DANLOS SYNDROME

The Ehlers Danlos Society
 

Ehlers-Danlos syndrome Awareness Month- May


GLAUCOMA

The Glaucoma Foundation
Childrens Glaucoma Foundation

Glaucoma Awareness Month- January


HEPATITIS C

American Liver Foundation
Hepatitis C Association

Hepatitis Awareness Month in the United States-May

Hepatitis Testing Day- May 19th


HIV/AIDS

GOVT WEBSITE
The Elizabeth Taylor AIDS Foundation
AIDS Foundation of Chicago

AIDS Awareness Month- December

World AIDS Day- December 1


HYDROCEPHALUS

Hydrocephalus Association
 

September is Hydrocephalus Awareness Month


INTERSTITIAL CYSTITIS

Interstitial Cystitis Association
 

Interstitial Cystitis Awareness Month- September


IRRITABLE BOWEL SYNDROME

International Foundation for Gastrointestinal Disorders
 

IBS Awareness Month- april


Lupus

Lupus Research Alliance
Lupus Society of Illinois
Lupus Foundation of America

Lupus Awareness Month- May

World Lupus Day- May 10


migraines

American Migraine Foundation
National Headache Foundation

National Migraine & Headache Awareness Month- JUne


MULTIPLE SCLEROSIS

Multiple Sclerosis Foundation
National Multiple Sclerosis Society Greater Illinois Chapter

Multiple Sclerosis Awareness Month- March


MUSCULAR DYSTROPHY

Muscular Dystrophy Association
MD Association Illinois Chapter

MD Awareness Month- September


MYASTHENIA GRAVIS

MYASTHENIA GRAVIS Foundation of America
 

Myasthenia Gravis Awareness Month-June


NAIL-PATELLA SYNDROME & neuro Behcet’s

National Organization for Rare Diseases
 

NEURO-BEHCET'S awareness day - May 20


NEUROFIBROMATOSIS

Children's Tumor Foundation
NEUROFIBROMATOSIS Midwest

NF Awareness Month- May

World NF Awareness Day- May 17


neuropathy

The Foundation for Peripheral Neuropathy
 

Neuropathy Awareness Week: May 5-11, 2019


osteoarthritis

OSTEOARTHRITIS foundation international
 

World Arthritis Day- Oct 12


PARKINSON’S DISEASE

Pakinson's Foundation
American Parkinson Disease Association
APDA Midwest Chapter

Parkinson’s Awareness Month- April

World Parkinson's Disease Day- April 11


POLYCYSTIC Kidney Disease

PKD Foundation
 

PKD Awareness Day- Sept 4


POST-CONCUSSION SYNDROME

Concussion Legacy Foundation
 

2019 Concussion Awareness Week: Jan 28 - Feb 3, 2019

National Concussion Awareness Day- 3rd Friday in September


POSTPARTUM DEPRESSiON

Alexis Joy D'Achille Foundation
 

national Maternal depression AWARENESS month- may


PTSD (POST-TRAUMATIC STRESS DISORDER)

National Center for PTSD
PTSD Foundation of America

PTSD Awareness Month- June

PTSD Awareness Day- June 27


REFLEX SYMPATHETIC DYSTROPHY

Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)
The International Research Foundation for RSD/CRPS
 

RESIDUAL LIMB PAIN

Amputee Coalition
 

Limb Loss Awareness Month-April


RHEUMATOID ARTHRITIS

Rheumatoid Arthritis Foundation
Arthritis Foundation

National Arthritis Awareness Month- May


SCHIZOPHRENIA

Schizophrenia and Related Disorders Alliance of America
SIDNEY R. BAER, JR. FOUNDATION
 

SEIZURES/EPILEPSY

Epilepsy Foundation
The Epilepsy Foundation of Greater Chicago

National Epilepsy Awareness Month- November

international epilepsy awareness day- march 26


SEVERE FIBROMYALGIA

National Fibromyalgia Association
Learn moreNational Fibromyalgia & Chronic Pain Association

National Fibromyalgia Awareness Day-May 12


SPINAL CORD DISEASE/injury

The Spinal Foundation
Wings for Life

National Spinal Cord Injury Awareness Month-September


SPINOCEREBELLAR ATAXIA

National Ataxia Foundation
 

International Ataxia Awareness Day- September 25


Superior canal dehiscence syndrome

Hearing Health Foundation
 

WORLD Hearing Day- March 3


SYRINGOMYELIA

American Syringolyelia & Chiari Alliance Project
 

TARLOV CYSTS

Tarlov Cyst Disease Foundation
 

TOURETTE SYNDROME

Tourette Association of America
The Tourette Association of America Illinois Chapter
 

TRAUMATIC BRAIN INJURY

Brain Trauma Foundation
Brain Injury Association of America

Brain Injury Awareness Month-March